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Welcome to my blog.I like writing,music,the great outdoors travel,shopping , new places,the adventure of marriage and the small pleasures of life.im just out going love to meet new people probobly the sweetest person ull ever meet!!

Tuesday, December 29, 2015

Cristian's Surviving Neurofibromatosis part 6

Cristian updates on his NF1 
December 4  he went to see his specialist to do a physical on him he is now 85 pounds 4"6 height.
Cristian also got some blood work done and all came out good a little high on somethings but he is growing slower all the doctors and I want. On March 17 of 2016 he has an appt  to see his other specialist to see any changes on Cristian. On October 29 he got his 2 nd surgery replace his implant! I Dixiana the mother of this brave boy still remember the day we found out Cristian had NF1 I think it is one of those memories you wish you could forget. Unfortunately, that won't happen, so I and my family face each day with the hope that Cristian  will be ok. That he won't get worse, that he won't be different from other kids.Although, Cristian  has been really lucky so far, there is a constant question as to how long will he be lucky. Cristian  realizes already at the age of 8 he is different. He is different from the other healthy kids at school and different by size! Cristian and many more kids with his condition NF1 deserve to be a kids who are happy and enjoying life, not worry their future with NF1 but to me a mother of a child with NF1 my son is a warrior! 

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