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Welcome to my blog.I like writing,music,the great outdoors travel,shopping , new places,the adventure of marriage and the small pleasures of life.im just out going love to meet new people probobly the sweetest person ull ever meet!!

Saturday, September 13, 2014

My son Cristian's story: Surviving Neurofibromatosis part 2

Christians new results Cristian started therapy seeing a psychiatrist  April 4, 2014 he as seen her so far 3x talking about his feelings towards his condition having NF1. Psychiatrist prescribed ADHD pills for him to do better jn school Dixiana started giving it to him August 8, 2014 so far pills gave him no result still Dixiana giving it time to see if things change since Cristian  as NF1 not everything works same as it would on a regular child may need a higher dose doctors say they may not even know side affects these pills can cause on a child with his condition. Dixianas  just left to observe him routinely after each pill is given.Cristian got his heart checked April 10, 2014 so far his heart wasn't growing it is normal that was a relief says the Cabral family. He got checked by his specialist in April 19,2014 after 6 months he looked well puberty was under control with the implant his growth was normal no weight was gained or inches tall he had blood test done a hand xray all with a great results everything normal. April 23, 2014 Cristian got sleep study done he was monitored all night with cables put all over his head and nose Dixiana had to stay over night in the hospital with him ,also everything came back normal.
Just as Cabral family was trying to cope with his diagnosis, they were hit again with more frightening news. August 14,2014 Cristian gained weight 79 pounds and  height was now 4.4 inches . Cristian got a MRI done  results of a faint tumor on his brain that's the cause of his early puberty and high hormone that will be monitored carefully every year hopeing it don't grow because he can have vision and speech aside with more side affects.Cristian also had some blood work.The doctors had put on hold these 3 shots everyday or 1 shot once a month for Cristian growth issue because he was doing fine but then again now the 2 specialist Cristian follows up with have to reconsider what's best for his health although these shots have never been tested on a child. Dixiana says There is nothing more precious to see than your children sleeping peacefully after a long day of fun activities.Feeling the depth of love you have for your child when suddenly you remember what the doctors have said and you are stopped in your tracks. You no more than close your child’s door when you are gripped by the fear that there is a time bomb underneath your child’s bed because there  is nothing you can do to help him. Doctors cannot tell you if it is ticking, they cannot tell you if it has a fuse, and if it does, how long the fuse is. What they can tell you is that one day, it may get better of it can get worst. The Cabral family says Each day is a gift.... Atleast  Cristian still alive and happy and that's the only thing that matters. Dixianas  promise for his son Cristian is I can't promise to fix all your problems, but I can promise you won't have to face them  alone! To be continued...

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