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Welcome to my blog.I like writing,music,the great outdoors travel,shopping , new places,the adventure of marriage and the small pleasures of life.im just out going love to meet new people probobly the sweetest person ull ever meet!!

Thursday, September 18, 2014

Cristian's Story: Surviving Neurofibromatosis updates...

When  your child is  ill, the whole family feels the pain, particularly the parents. Regardless of the condition, the stress and pain families suffer!9-18-14 Dixiana got taught by a nurse how to start to give shots 3 x daily on Cristian for a few weeks  for his growth hormones and if he has no side affects such as diarrhea and stomach pain that can lead to gall stones! If he can tolerate with success these shots he will then get one once a month....  This now is the first of many times he will miss school for doctor visits! Dixiana says it's hard sit by your child  bedside  him in the MRI visit knowing what the doctors are  looking for—a brain tumor— which was found! “Dixiana tried her best to digest t'her son NF1 diagnosis, take it all in!,” she said. “Being thrown into a situation where all I could do was sit by and watch as my precious child changed from a healthy, normal kid, to sick,  child with so many tests and doctors visits v it's difficult!Dixiana  said it was hard  when she began giving Cristian stop growth hormone suppressant injections for his condition. Every eight hours for a few weeks, i have to poke my 6 year-old with a needle full of a painful push of medication that burned going in. No one else did the shots, just Me , i cry after doing it : injecting Cristian as he slept, waking him up late at night, and then giving with another shot in the morning n then in the afternoon n repeat the next day.
“Dixiana says felt like I was torturing him, and no one could relieve me from the pain I had to cause my own child,” Dixiana said. “Its agonizing..Dixiana and the Cabral family biggest challenge is dealing with the anxiety about what’s coming next... To be continued 

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