Cristian’s Surviving Neurofibromatosis part 10

On August 3 , 2019  the cabral family  moved  to a house to a good neighborhood a quiet suburb , which meant switching all our providers except of course his  specialists. On August 23 2019 Cristian had an mri results were the same nothing has changed . On April 5 Cristian seen his primary doctor and he weight 114 and height was  5’2 . On April 18 ,2019 Cristian seen his specialist Doctor josephson he weight 116  2 more pounds his height is  5”2 , he got an X-ray done . 

Results were he will grow about 6,7 inches more . On September 2019 he seen his other specialist Doctor Listernick  he weight 124  gained 8 pounds in 6 months and height was 5’4 he’s 2 inches taller now .  All looking normal . On May 1,2020 cris went to get his eye exam done again the  Goldman visual fields and another  called ocular computerized tomography . On may 12 , 2020 cris seen his Ophthalmologist to talk about the results of his  recent tests all looked well just he needed new prescriptions on his glasses . On May 14 ,2020 he wasn’t able to see Doctor Listernick with this Corona  virus going on because he is high risk child his eye doctor did his tests but his genetic doctor wanted to see him but through face time we did a video appointment he said he was content with Cris results with his eye and his last mri the tumor was still stable his other specialist had no concerns with Cristian growth so he said no mri this summer . One new thing they shared was if Cristian is not happy being 5’8 they can increase hormones to grow what doctors started with him but slowing it down  but Dixiana thought  her son been through enough not even an option .  Cristian shaves his hair growth is faster then others but he is doing great getting use to puberty . 

Fortunately, he is healthy and after that, the cabral family is told to have his yearly visits starts now again in July 30,2020.

My joker theory

Joker is a movie about a psychopath in the making. It shows how a man suffering from a mental illness was transformed into the clown prince of crime that we all know now as the famous  joker. He has an uncontrollable condition of laughing at the wrong moments. 

The next point that I am going to make is about the reality of this movie. I believe that this movie was a call for gun violence , because it shows that in the wrong hands a gun can be very powerful. This was also a reality call in the sense that mental illness patients are not cared for as much as they should be caring for them, in other words say someone has physical damage everyone's gathering around them and supporting them but when someone has a mental illness they are isolated away from most people. 

watching it, I felt empathy for Arthur, yes but many people say I quote “  but I am not about to go and kill a lot of people because of it, regardless of how much I can relate to his character. “ My  point is not everyone thinks the same .

After that, there was the feeling you felt when watching this movie. I am not going to lie to you this is a depressing movie, it is sad and he gets constantly beat up whether it's mentally or 

physically. It is sad and disheartening to see.

Finally my opinion of it. I believe anyone who just likes a good suspense movie should go watch this. It had a really good plot (not easy to follow, because joker imagines stuff), it had a massive play twists and it was just an overall good movie. I just want to say the Joker such  an origin story could encourage misplaced sympathy at best, and violence  at worst . People like the Joker already exist in real life, my argument goes on like a parent my fear is kids and even not sane adults will try to imitate  the joker . 

Cristian’s Surviving Neurofibromatosis part 9

New updates on September 20 2018

Cristian seen his genetics specialist and his ophthalmologist. Cristian gained 4 pounds after 6 months and grew one inch he is now 100 pounds and 4 11”. The specialist wanted  to see him after his appt with a new test called Goldman visual fields and anther called ocular computerized tomography on feb 22 2019 . On October 18 ,2018 Cristian seen his endocrinology specialist he gained 2 pounds and the height stayed the same . Cristian is 102 pounds still 4”11. We talked about the few changes Cristian will have going through puberty voice and hair growing more cafeaulait spots . But nothing too concerning just to keep up with all his check ups and his mri’s. March 20 2019 Dixiana went back to Cristian’s Ophthalmalogy for results .

Dixiana knew that Cristian seen an eye doctor because of the tumor in his Brain but little did she know was more concerning his vision in the future. Cristian specifically has An optic nerve glioma (also called an optic pathway glioma) is a  brain tumor that arises in or around the optic nerve, which connects the eye to the brain.  If the the tumor progresses, it presses on the optic nerve, causing a child’s vision to worsen and blindness may occur. Cristian will have to go on chemotherapy for awhile.

The eye doctor diagnosed this like benign neoplasm of eyeball. Over all Cristian vision worsen but also it’s hard  to tell because it inherited to use glasses in his family also another is the tumor but for now it has not affected his vision but the Cabral family has to know the negative and the positive of Cristian’s future. 

Cristian’s Surviving Neurofibromatosis part 8

May 18, 2017 Cristian went to see one of his specialist after 6 months past he weight 92 pounds and height was 4"8. Cristian got X-ray done and blood work. Cristian also got seen by his Ophthalmologist Cristian vision has gotten worst but they scheduled for a MRI to check if it's the tumor affecting his vision but if it's not that the  eye doctor says it may just be genetic because his older brother also has glasses and also has Myopia like Cristian.Cristian MRI scheduled for august 21, 2017.June 20, 2017 Cristian had another appt to see his other specialist he weight 94 pounds now and height 4"10. Both doctors explain to Dixiana how Cristian growth and weight is normal  also test results came out normal. Cristian specialist explains to Dixiana how Cristian will have one last surgery this summer and then after a year has past or 2 in a half he won't need any more he can his puberty at age 11. On 08-17-17 Cristian had another implant put in. Cristian so far been doing great no bone are deformed he is growing slowly and not gaining too much weight, tumor we are yet to know if it's ok but he just needs to keep up with his check ups and he will be fine. Cristian been active in sports he keeps himself in good shape still a warrior .

Hard, YES. Impossible, NO!

Here are 8 facts that will change your mind about smoking cigarettes.

1. Smoking ages your skin faster.

2. Stains your teeth and fingers.

3. All smokers have cigarette smell on them.

4. Smokers suffer from shortness of breath three times more than nonsmokers. 

5. Cigarette smoke is toxic and poisonous to the human body. It contains about 7,000 chemical agents, including almost 70 that causes cancer.

6. Every year, secondhand smoke causes deaths.

7. Smokers die 13 to 14 years earlier than nonsmokers.

8. Some people smoke because they think it helps them relax. A new study suggests otherwise smoking actually triggers stress. The truth is that smokers are addicted to the nicotine in tobacco; as the nicotine from one cigarette wears off, they start to crave another and become nervous and tense. Doesn’t sound very relaxing!

Exercise is one of the best ways to motivate your self to quit smoking it is how you will truly realize how cigarettes made you weaker. It will be difficult but you will need to remind your self of the prize at the end of the journey healthy you and a longer and better life.

Give your lungs fresh air 

Give your body exercise 

Give your lips kisses not cigarettes 

Give yourself  life not death!

Take control and make a change 

The urge of smoking will pass.

Life lesson advice from a 27 year old

.Begin each day with your favorite music 

.keep secrets 

.Never give up on anyone. Miracles happen everyday 

.Be brave. Or pretend to be no one can tell the difference 

.Make it a habit to do nice things to people

.Give people a second change just not a third 

.Be romantic 

.loosen up and relax life love day by day 

.Never waste an opportunity to tell someone you love them 

.Become someone's hero 

.Don't expect life to be fair

.Take charge of your attitude. Don't let someone choose it for you 

.Become the most positive person you know that 

Cristian's Surviving Neurofibromatosis part 7

After 4 years past and Cristian has more  café-au-lait spots on his body he always asks what they are Dixiana tells her son it's what makes him special & unique. All children are special Dixiana says but she explains to him daily how he was born gifted.Dixiana finds that this also helps him with self-esteem issues that he was already began to develop. Doctors told Dixiana at age 10 Cristian will start shaving his face and other parts of his body that can't be stopped.April 28 he seen his specialist to check up on him see how he's growing he says Cristian is taller than 97% of boys his age. Cristian weight in December 85 pounds and height was 4"6 now in April he weight 91 pounds and height was 4"7 . On May 10 he got his eye checked to see if tumor  was making any affect on his vision all came out fine eye sight changed alittle. On June 10 he had his next MRI all came out fine tumor is still small. His last visit with his other specialist was July 21 Cristian weight was 91 height 4"8 he has blood work done and X-rays still waiting on the results. Specialist told Dixiana he will have one more last surgery the implant in his arm and then when he turns 10 they will discuss to see if they'll just let him go through puberty. It is scary and it is what keeps Dixiana up at night trying to learn everything she can what to feed her child, because he gains weight fast what therapist you must get your child in to see to stop this thing from taking over his life so he can have someone to talk to. Like any parent you obsess and research and try to feel like you can control at least a small piece of this rare condition NF1 Because with that control, comes hope and hope, well, that is something we parents with kids with NF1 desperately need.

 Cristian still stays strong and brave with each and every challenge his future brings. Dixiana and Cristian's family members are making this whole experience as positive as possible for him.