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Welcome to my blog.I like writing,music,the great outdoors travel,shopping , new places,the adventure of marriage and the small pleasures of life.im just out going love to meet new people probobly the sweetest person ull ever meet!!

Thursday, May 21, 2015

Cristian's Surviving Neurofibromatosis part 5

March 5 Cristian  went to see one of his specialist that knows more about his NF1 condition DIxiana  had a list of questions to ask him and he answered them one by one for example Dixiana asked what part of the brain was Cristian tumor in He responded  in back of Cristian eyes very tiny but he explained this tumor affects Cristian hormone levels his  hunger sleep cycles moods and blood pressure also body weight. The only concerning thing for Dixiana  was that Cristian her son will develop small tumors  on his body while he grows under or on top of his skin when specialist can't specify when or at what age  but if it bothers Cristian he can get it removed with surgery. Specialist also gave  Dixiana support groups information help her connect with other families with kids with NF1. Cristian had his blood pressure high that day and Dixiana asked why specialist explained sometimes with his  condition it may happen this all had to do with tumor in his brain. The same day Cristian got seen by the eye specialist his vision got a little worst but tumor is not affecting his vision.April 10  cristian had a MRI done weights  80 pounds and height  4'5 the results were the same tumor is still the same size hasn't changed.  April 28 Cristian seen his physiciatrist  she seen improvement  with cristian  so she is seeing him one last time in June. May 21 Cristian  seen  his specialist that gives him a physical and checks his growth and how puberty is going Cristian weighs 82 pounds n still 4'5 height by now Cristian growth the specialist says is fine Dixiana explain how she noticed mustache on Cristian and more hair on his legs and strong odor on his armpits the specialist explains that theirs another part of the body not the brain that makes hormones that it can't be stopped by his implant so he will be growing more hair while he grows also he will get more appetite she told Dixiana just to try control what he eats. This same day he had blood test done and got his spine checked  for any tumors. The Cabral family says 
Our journey is far from over in the world of NF, We are making this whole experience as positive as possible for Cristian even with this NF1 medical challenge. Cristian is very strong and brave and happy boy that's what makes him so special.