Cristian's Surviving Neurofibromatosis part 7

After 4 years past and Cristian has more  café-au-lait spots on his body he always asks what they are Dixiana tells her son it's what makes him special & unique. All children are special Dixiana says but she explains to him daily how he was born gifted.Dixiana finds that this also helps him with self-esteem issues that he was already began to develop. Doctors told Dixiana at age 10 Cristian will start shaving his face and other parts of his body that can't be stopped.April 28 he seen his specialist to check up on him see how he's growing he says Cristian is taller than 97% of boys his age. Cristian weight in December 85 pounds and height was 4"6 now in April he weight 91 pounds and height was 4"7 . On May 10 he got his eye checked to see if tumor  was making any affect on his vision all came out fine eye sight changed alittle. On June 10 he had his next MRI all came out fine tumor is still small. His last visit with his other specialist was July 21 Cristian weight was 91 height 4"8 he has blood work done and X-rays still waiting on the results. Specialist told Dixiana he will have one more last surgery the implant in his arm and then when he turns 10 they will discuss to see if they'll just let him go through puberty. It is scary and it is what keeps Dixiana up at night trying to learn everything she can what to feed her child, because he gains weight fast what therapist you must get your child in to see to stop this thing from taking over his life so he can have someone to talk to. Like any parent you obsess and research and try to feel like you can control at least a small piece of this rare condition NF1 Because with that control, comes hope and hope, well, that is something we parents with kids with NF1 desperately need.

 Cristian still stays strong and brave with each and every challenge his future brings. Dixiana and Cristian's family members are making this whole experience as positive as possible for him.

Do you know what love is does anyone?

Love is a word said to another person now and days  like a hi and a bye! When it's said it has no meaning it's just said to make that person believe they are special! Most people don't even experience the feeling and some of us are lucky to feel it!  

Love is a feeling that can be confused with being attached to someone but the only way you can tell that if it is love is time. If time passes and you forget the person it was never love because when you love distance or time can never make you forget that feeling that person once gave you no matter the months years sometimes you miss and love that person more.  Now sometimes when your attached feelings are like 10x more intense  it's this  feeling

 desperation for him or her 
It's a horrible its to have a craving that will never be satisfied. But the truth is your just so use to that person being there all the time that you can't function without them but you actually can.People say that you can be happy alone that's a lie you always need someone to make you see life different to want to be a better you  to make you smile daily. The truth is love is a word that should only be said if it's truly felt maybe that way we would have less heart breaks and more happy couples...